Rare Disorders: Research, Surveillance, Health Promotion, and Education

 

To (1) Promote public health capacity by conducting research to expand the knowledge base around people with complex disabling conditions, including muscular dystrophy, fragile X syndrome and spina bifida across the lifespan, with the goal of improving their health and quality of life; (2) apply lessons learned to design public health approaches for other childhood onset complex disabling conditions; (3) develop and disseminate information from surveillance and epidemiologic research, identifying intervention strategies for secondary conditions; (4) assess access to and costs associated with health care these conditions; (5) collaborate with partners in the public and private sector to support the development of standards of care and improve health care and related services for people with complex disabling conditions; (6) deliver technical assistance to public and private organizations, universities and local and state agencies on accessing factors affecting medical, functional, and psychosocial outcomes; (7) provide leadership in health education and promotion in people of all ages who have complex disabling conditions and their families; and (8) support partners in facilitating early identification of these diseases and adoption of effective interventions.

Active 93.315 Centers For Disease Control and Prevention, Department of Health and Human Services B - Project Grants Not applicable. Public Health Service Act Sections 301, 301(a), 311, and 317C (42 U.S.C. Sections 241, 241(a), 237b-4, 243, 247-4, and 247b-4, as amended. Not applicable. State; Local; Public nonprofit institution/organization; Federally Recognized Indian Tribal Governments; Individuals/Families affected by rare disorder/conditions; Private nonprofit institution/organizations, minority populations including Spanish speaking populations. Applicants should review the individual CDC Notice of Funding Opportunity (NOFO) document issued under this listing for any required proof or certification that must be submitted prior to, or simultaneous with, submission of an application package. Preapplication coordination is not applicable. This program is excluded from coverage under 2 CFR 200, Uniform Administrative Requirements, Cost Principles, and Audit Requirements for Federal Awards. After review and approval, a Notice of Award (NoA) will be prepared and processed, along with appropriate notification to the public. Initial awards provide funds for the first budget period (usually 12 months) and the NoA will indicate support recommended for the remainder of the project period, allocation of Federal funds by budget categories, award requirements, and special conditions, if any. Check Grants.gov for any relevant NOFO information regarding processes for applying for assistance. From 90 to 120 days. Not applicable. More than 180 days. Project period of performance is 1 to 5 years. After initial awards, and subject to availability of funds, projects may be continued non-competitively contingent upon satisfactory progress by the recipient (as documented in required reports) and the determination that continued funding is in the best interest of the Federal government. Applications will be evaluated on the review criteria described in the Notice of Funding Opportunity Announcements (NOFOs). In general, the review and selection process of complete and responsive applications to the NOFO consists of determination of the scientific and technical merit by objective or peer review, availability of funds, and relevance of program priorities and the priorities of CDC. Funds may be used to strengthen, expand, build upon or enhance research, surveillance, health promotion, education, and prevention/intervention activities that contribute to the mission and activities of the Division of Human Development and Disability. Funds may be used to improve and strengthen State and local public health infrastructure by providing technical assistance to other appropriate health agencies, organizations, special groups or coalitions. Funds may be used to support capacity building, program planning, development, implementation, evaluation, and surveillance for rare disorders and health outcomes, including related health promotion, education and training, and prevention/intervention. Funds may also be used to coordinate the dissemination of prevention information to the general public, target populations, state and local agencies, and public and private sector organizations in the United States. CDC will have substantial involvement with the award recipient during performance of the funded activity. Performance Reports: Annual Federal Financial Reports (FFR) and performance/progress reports are required. Final FFRs and performance reports are required. Other reporting may be required and will be outlined in the NOFO or the Notice of Award. Not applicable. In accordance with 2 CFR ?200, as codified in 45 CFR ?75, there is a 3-year record retention requirement; records shall be retained beyond the 3-year period if final audit has not been done or findings resolved. Property records must be retained in accordance with HHS Grants Policy Statement requirements. Statutory formula is not applicable to this assistance listing.

Matching requirements are not applicable to this assistance listing.

MOE requirements are not applicable to this assistance listing. Financial assistance is provided for a 12-month budget period with a period of performance of up to five years subject to the availability of funds and satisfactory progress of the recipient. Notice of Award None/Not specified. Shelia Jones
1600 Clifton Rd
Atlanta, GA 30043 US
sjones3@cdc.gov
Phone: 3 75-0958-1-1-550 (Cooperative Agreements) FY 22$5,630,668.00; FY 23 est $5,630,668.00; FY 24 est $5,630,668.00; FY 21$5,297,559.00; FY 20$649,518.00; - Award Amounts range from $25,000 to $655,000. Average - $152,000 Regulations governing this program are published under 45 CFR 75. Not applicable.